Jan 2010
I know it has been a long time since I have written on this blog.
I did something I never thought I would do. I wrote a book!
As of yesterday it is complete and ready to go to print.
The book is called “The Best Kind of Different” My family’s
journey through Aspergers. Like SHADE this was a very
healing process for me. My third child has Aspergers.
The release date is March 23rd and you can pre-order it at Amazon.com .
I do hope that during these much colder months
that you take this oppurtunity to really look at your
body for changes in your skin. This is the best time
to do so. Our bodies have not been exposed to the sun
too much when it is 20 degrees outside like here in New England.
Wishing everyone a Healthy, Happy 2010.
Stay Shaded,
Shonda
Oct 2009
Hello Everyone,
I spoke at the Glenna Kohl Fund For Hope’s First Annual Angel’s Masquerade Ball on Saturday, October 17th. This is in memory of my dear friend who recently lost her battle with melanoma.
15 years ago I stood before the FDA waiting for my turn to give my
testimony on a clinical drug trial for ALS.
One by one I heard families plead to have the drug.
They explained what could happen in a human life over the course of
three months, because that was the average increase in life expectancy
of a person taking this clinical drug.
One person in particular who was in her mid thirties explained what
three more months would have meant to her husband:
celebrating their 12th wedding anniversary
watching their son turn 9
seeing their daughter’s first dance recital
and watching their third child start kindergarten
This moment will be etched in my memory forever. How much time three
months really means.
As I stood there shaking and crying, I searched to find the words that
could even come close to the message that this person was giving.
As I walked to the podium carrying my one year old son, I shook and cried
so hard that my husband had to find the words to say to the four stone
faced adults, who sat on the board and with a yay or a nay, approved or
denied a request.
Many of you probably don’t know how I came to know Glenna. When Red Sox
nation was so excited about our coming to the Boston one person reached
out to me to say “Welcome, I love what you are doing, I too am a melanoma
survivor.”
The email friendship began. Over the next three years we kept in touch
on our health, our families, and of course our Red Sox.
I remember the first time I ever met Glenna. It was with her brother and
during a rain delay on what ended up being a very long game.
Glenna was always positive, smiling and never seemed to complain.
She touched my heart for so many reasons.
She was graceful and confident even though you knew her days and months
had to be filled with needing a break.
We would check in with each other time to time and once or twice a year
I would invite her to the game so we could catch up.
I was fortunate to meet mom and dad also.
I introduced her to Kelli Pedroia at one of these games.
Just as I thought Glenna had a way of making you feel good being around
her.
Kelli would always check in to see how Glenna was doing. Of course
Glenna’s version was always positive and filled with humor.
As Glenna rooted for the Red Sox, the Red Sox rooted for Glenna.
Even though Glenna was sick she worked hard to spread the word about
melanoma and how it could be prevented. She shared her story only to
make a difference.
She was a good person with a heart of gold.
When Glenna passed it broke all of our hearts.
She was too young and spent too long fighting.
I was shocked when I saw a picture of Glenna with long beautiful blonde
hair.
She was a very beautiful girl.
You see, I had never seen Glenna not sick or with hair.
The confidence that she showed and love of life was all that I could
see.
I would be lying though, if I said I saw her without hair, because Glenna
always wore a Red Sox hat!
If you are wondering why I started telling the story of standing before
the FDA here it is:
I can not tell you anything that you don’t already know about Glenna.
What I can tell you is what I learned after the FDA hearing, that like
ALS or melanoma, not one voice will change the world. It was the stories
that were told that day; the stories that will be told of Glenna for
years to come.
Glenna in her darkest days still looked to help others. That is what
she wanted. Tonight is a perfect example of carrying her legacy on. Her
passing will bring life to others.
I love the saying:
What we do for ourselves dies with us. What we do for others lives on!
Glenna’s name will live on through each of us in the stories that we
share about her courage and love of life. Thank you to each and every one
of you out there tonight for being here.
Thank you to the Kohl family for sharing her with everyone. We are all
better people for knowing her.
Please let us all have a good time tonight and celebrate Glenna’s life.
Shonda Schilling
BOXBOROUGH, Massachusetts — Acton resident Elias Thomas, of the Sanford-Springvale RotaryClub, and his wife, Jane, recently attended the annual conference for Rotary District 7910 and served as the official representatives for Rotary International President Wilf Wilkinson and his wife, Joan.




Boston, Mass. — On Earth Day, U.S. Environmental Protection Agency (EPA) Administrator Stephen Johnson joined Boston Mayor Thomas Menino and SHADE Foundation of America founder Shonda Schilling to recognize Boston as a SunWise Community.